Information Sheet 19: Social support for racialized families of children and youth with developmental disabilities: COVID-19 pandemic inequities

People with disabilities face increased risk for exposure, complications, and death from the recent COVID-19 public health emergency (Shapiro, 2020; Turk et al, 2020). The pandemic lockdown, with disruption of services and support (Chung, 2020) and accessibility barriers to prevention and response measures (Eshraghi et al., 2020), increased the challenges associated for people with developmental disabilities (DDs) (Ameis et al., 2020). Racialized people with disabilities (including DDs), further face systemic disadvantages across their social determinants of health (John et al., 2016); the interlocking barriers to care position them at a high risk of the effects of the COVID-19 pandemic. Our research findings suggest that social support mitigates the effects of stressors for families to promote the wellbeing of children / youth with DDs leading to positive outcomes (Khanlou et al., 2022; Khanlou et al., 2015).

Lack of data on the effects of the recent pandemic on people with DDs results in the inability of health surveillance systems to accurately determine the impact of the pandemic on marginalized populations and support needed (Turks et al., 2020). Increasing calls from racialized communities and disability advocates, scholars, and practitioners urge for the need to generate more data on the pandemic experiences of racialized people with DDs.